The following section offers a sample of national and state organizations, services and other resources available for stroke survivors, caregivers and families. This is not an exhaustive list of resources available. The OSN does not officially endorse all the books and apps listed.
The national associations that provide comprehensive and up to date resources in English and Spanish are the American Stroke Association and National Stroke Association.
To locate local Oregon stroke resources near you click on the county on the MAP supplied by the Oregon Stroke Network.
BOOKS AND OTHER PUBLICATIONS
National Stroke Association (NSA) Monthly Newsletter.
“Keep up to date on NSA news, educational programs, and information.”
You may sign up for a subscription on the NSA website.
National Stroke Association (NSA) “StrokeSmart” Magazine.
“Subscribers can look forward to receiving the latest in stroke research, as well as practical tips on money, life after stroke, and wellness.”
You may sign up for this bi-monthly magazine on the NSA website.
National Stroke Association Resource Library.
This online resource has free fact sheets and other publications that you can download. Click on the following link for more information.
American Stroke Association (ASA) Resources
This online site has free publications that you can download. Click on the following link for more information.
American Stroke Association (ASA) “StrokeConnection” Magazine.
Sign up for a subscription on the ASA website. For over 20 years Stroke Connection has been the award-winning voice of support, information and inspiration for a vast community of stroke survivors and their families.
After a Stroke: 500 Tips for Living Well, 2nd Ed. by Cleo Hutton
Healing the Broken Brain: Leading Experts Answer 100 Questions about Stroke Recovery, by Dr. Mike Dow and David Dow
Living with Stroke: A Guide for Patients and Their Families, by Richard C. Senelick, MD
My Stroke of Insight: A Brain Scientist’s Personal Journey, by Jill Bolte Taylor, PhD
Stronger After Stroke: Your Roadmap to Recovery, 3rd Ed. by Peter G. Levine
When Your Spouse Has a Stroke: Caring for Your Partner, Yourself, and Your Relationship, by Sara Palmer PhD and Jeffrey B. Palmer, MD
Central Oregon http://www.
Aphasia Support in Oregon https://www.aphasia.org/
American Stroke Association www.strokeassociation.org 1-888-478-7653
“For nearly 100 years, we’ve been fighting heart disease and stroke, striving to save and improve lives.”
National Stroke Association http://www.stroke.org/ 1-800-787-6537
“For over 30 years we have been the trusted source for free resources and education to the stroke community. Together, we empower survivors and their circle of care to thrive after stroke.”
National Alliance for Caregiving www.cargiving.org 1-301-718-8444
“Recognizing that family caregivers provide important societal and financial contributions toward maintaining the well-being of those they care for, the Alliance is dedicated to improving quality of life for families and their care recipients through research, innovation, and advocacy”
National Aphasia Association www.aphasia.org 1-800-922-4622
“The National Aphasia Association has been providing information and support to people with aphasia and their caregivers for over twenty-five years.”
Brain Aneurysm Foundation www.bafound.org 1-888-272-4602
“The Brain Aneurysm Foundation is the nation’s premier nonprofit organization solely dedicated to providing critical awareness, education, support and research funding to reduce the incidence of brain aneurysm ruptures.”
Brain Attack Coalition www.brainattackcoalition.org 1-301-496-5751
“The Brain Attack Coalition (BAC) is dedicated to improving prevention, advancing treatment, and enhancing recovery to eliminate the burden of stroke.”
Children’s Hemiplegia and Stroke Association www.chasa.org
“The Children’s Hemiplegia and Stroke Association (CHASA) exists to help children – children who have survived an early brain injury that results in hemiplegia or hemiparesis (weakness on one side of the body). We also help adults who have been living with a diagnosis of hemiplegia since childhood.”
“Focused on stroke survivor and caregiver support and healthcare provider stroke education.”
“We’re talking about how strokes are preventable, treatable and beatable!”
“Providing public health leadership to improve cardiovascular and brain health for all.”
“We want to help you live healthier and prevent stroke and serve as a source of support for those touched by stroke. “
“The National Stroke Association will promote equality and support for all impacted by stroke.”
“This is a group for stroke survivors and their families to support each other and cope with changes in their lives.”
SMART PHONE APPLICATIONS
These apps are provided as resource for the reader. The OSN does not officially endorse these Apps.
The National Stroke Association provides a list of apps for stroke survivors, families, and caregivers. Click on the following link for more information.
The American Stroke Association provides a list of apps for stroke survivors, families and caregivers. Click on the following link for more information.
Constant Therapy App https://www.constanttherapy.com/
Science-based cognitive and speech exercises used for stroke, traumatic brain injury, aphasia and dementia. Awarded by the American Stroke Association and AARP.
Apraxia Therapy Lite App https://tactustherapy.com/app/apraxia/
This is a speech therapy app that uses video technology to facilitate and improve speech-impaired individuals.
Stroke Connection Magazine App http://strokeconnection.strokeassociation.org/Subscribe/Download-the-Stroke-Connection-App-for-FREE/
This is a digital version of the American Stroke Association magazine.
STROKE SUPPORT GROUPS
Please contact the support group listed to confirm the time and location of the meetings.
Oregon Stroke Network Map
To locate local Oregon stroke support groups near you click on your county on the MAP supplied by the Oregon Stroke Network.
National Stroke Association Stroke Support Group
The National Stroke Association provides a list of stroke support groups in Oregon. Click on the following link for a list of support groups in Oregon. http://portal.stroke.org/a_supportgroupsearch_new
American Stroke Association Stroke Support Group
The American Stroke Association provides a list of stroke support groups in Oregon. Click on the following link for a list of stroke support groups in Oregon.
Brain Injury Alliance of Oregon
Oregon Stroke Network Map
To locate local Oregon social services near you click on your county on the MAP supplied by the Oregon Stroke Network.
Oregon Services for Senior and Disabled People
Aging and Disability Resource Connection of Oregon (ADRC)
This Oregon based agency provides information on transportation, legal assistance, housing, community living, financial and nutritional assistance, caregiver support, and many other resources.